Continuing Care (children and young people)


NHS Continuing Care services are arranged and funded by the NHS for people that are not in hospital but have ongoing health needs. 

It is one pathway and a package of care provided by the NHS to children and young people who have very severe or complex health needs. NHS continuing care can be provided in any setting outside hospital, such as in the young person’s own home or in a school or residential setting. 

The North Central London Children’s Continuing Care Policy is based on the Department of Health’s National Framework for Children and Young People’s Continuing Care (2016) and should be read in conjunction with this document. The Policy (including Appeals Policy) sets out the process of assessing, deciding and agreeing continuing care or bespoke packages of care, led by the North Central London CCGs; Islington, Camden, Barnet, Enfield and Haringey. 

Who can get it?

NHS Continuing Care is not dependent on any particular disease, diagnosis or medical condition and is for anyone assessed as needing a certain level of health care. 

People who may qualify for NHS Continuing Care include those living with a complex medical condition that require a lot of care and support or those who need highly specialised nursing support. This includes people with learning disabilities, physical disabilities and mental health needs. 

Referrals to the service should be made via a health professional, GP, Paediatrician, Health Visitor or School Nurse by contacting the CLCH team at CLCHT.complexcareteam@nhs.net or 0208 349 7066 

Personal Health Budgets

Personal health budgets support the vision of a more personalised health service. They are one way of giving people more control over decisions about when, how and from whom they receive their care. 

Those who are eligible for NHS Continuing Care have the right to ask their nurse for a personal health budget and have the right to have a personal health budget if appropriate. 

Link to:  CLCH Continuing Care team